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Our story & my WHY
Read more: Our story & my WHYThis is a recap and round up of posts about our early years with Isaac in case you missed any along the way or are just finding our story. Please share widely and invite your friends to read along, too.
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Signs of hope
Read more: Signs of hopeEven before we learned Isaac’s diagnosis, we knew his gross and fine motor skills were delayed. But I clearly remember thinking, surely speech would be a strength. Communication has always been one of my strengths. But once we knew Isaac had an XY chromosome variation, we knew speech therapy would be another part of his…
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Writing his own story
Read more: Writing his own storyThe first days, weeks, and months after we received Isaac’s genetic diagnosis were full of challenges, none more important than learning how to accept this new reality. Here I share some of the words that gave us hope and still help me through the hard days.
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He’s not sick
Read more: He’s not sickHaving a child with developmental delays would force us to contend with our biases and those of our society, values that are deeply rooted and not easily shaken, like the worth we place on education, ability, achievement and strength. These are not bad things, mind you. Todd and I had top scores in this value…
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A Rare Diagnosis
Read more: A Rare DiagnosisA peek behind the curtain into a parent’s grief and what it’s like to receive a rare diagnosis for a child.
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We Found Something
Read more: We Found SomethingThis is the story of how we finally learned that our son, Isaac, has a rare genetic disorder and how the days immediately following that call unfolded. Shared here in hopes of spreading awareness and compassion.
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Still Not Knowing
Read more: Still Not KnowingThis post continues the story of our concerns about Isaac’s unexplained developmental delays and our search for answers. For more backstory, see my previous posts, “The Very Beginning” and “Not Knowing.”
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Not Knowing
Read more: Not KnowingIn my last post, The Very Beginning, I told the story of Isaac’s birth and the swarm of questions that began with his first breath. Here, I go back to the early months of “not knowing,” a gut feeling that something was different about Isaac that we couldn’t quite articulate. Fifteen years later, it is…
Gray Colored Glasses 