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World PANS/PANDAS Awareness Day 2025
Read more: World PANS/PANDAS Awareness Day 2025Awareness Day is a time to celebrate how far Isaac has come but also to remember how much more work there is to do to spread awareness about this treatable disorder that too often goes untreated in kids who are suffering.
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Raising Awareness at the Texas Capitol
Read more: Raising Awareness at the Texas CapitolOn October 9, I took a day trip to the Texas State Capitol in Austin where I served on a panel of parents and practitioners for the second annual PANS/PANDAS Awareness event. Following some moving family testimonials, I had the opportunity to introduce the PANS/PANDAS book project to a very receptive audience.
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National Daughters Day
Read more: National Daughters DayNational Daughters Day offers a welcome prompt to write about my beloved daughter and also to remind us—all of us—that we never know what hardships people are carrying behind the scenes.
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Disability in the National Spotlight
Read more: Disability in the National SpotlightI have heard from countless friends and followers since Gus Walz’s moving display of emotion at his father’s acceptance speech earlier this week. For worse, but also for better, it’s been all over the news this week. As the parent of a neurodivergent child myself, let me encourage you to take this moment in time…
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A roll of the dice
Read more: A roll of the diceParents of kids with disabilities are not given some special dispensation that prepares us to handle everything that comes our way. We are just like other parents, but we inherit a workload and an emotional load a million times harder from the day our child is born. (Yes, I have a neurotypical child, too.) Some…
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Wait for it …
Read more: Wait for it …It’s been a minute! This may seem like a sad post in the beginning, but as the title says, wait for it. It’s actually hilarious. And like everything I write for Gray Colored Glasses, it’s real life. From memory care to belly laughs, this post has it all.
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Glasses and grief
Read more: Glasses and griefThese few episodes in Isaac’s early years are just a snapshot of our experience as his parents. It felt like there was something unexpected around every corner. The grief of having a child with disabilities is not a single event but something that unfolds continually over time. And I suppose what I really grieved, over…
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Our story & my WHY
Read more: Our story & my WHYThis is a recap and round up of posts about our early years with Isaac in case you missed any along the way or are just finding our story. Please share widely and invite your friends to read along, too.
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Signs of hope
Read more: Signs of hopeEven before we learned Isaac’s diagnosis, we knew his gross and fine motor skills were delayed. But I clearly remember thinking, surely speech would be a strength. Communication has always been one of my strengths. But once we knew Isaac had an XY chromosome variation, we knew speech therapy would be another part of his…
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Writing his own story
Read more: Writing his own storyThe first days, weeks, and months after we received Isaac’s genetic diagnosis were full of challenges, none more important than learning how to accept this new reality. Here I share some of the words that gave us hope and still help me through the hard days.
Gray Colored Glasses 