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We Found Something
Read more: We Found SomethingThis is the story of how we finally learned that our son, Isaac, has a rare genetic disorder and how the days immediately following that call unfolded. Shared here in hopes of spreading awareness and compassion.
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Still Not Knowing
Read more: Still Not KnowingThis post continues the story of our concerns about Isaac’s unexplained developmental delays and our search for answers. For more backstory, see my previous posts, “The Very Beginning” and “Not Knowing.”
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Not Knowing
Read more: Not KnowingIn my last post, The Very Beginning, I told the story of Isaac’s birth and the swarm of questions that began with his first breath. Here, I go back to the early months of “not knowing,” a gut feeling that something was different about Isaac that we couldn’t quite articulate. Fifteen years later, it is…
